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MSA  |  Muscular Dystrophy  |  Epilepsy  |  Optic Neuritis  |  Encephalomyelitis  |  SMA  |  Huntington's Disease  |  Friedrich Ataxia  |  Diabetes  |  DMD  |  Alzheimer Disease
  • Batten disease     Treatment We Offer

  • What medications do you use on Batten disease patients?     Q&A

    What class/type of anticonvulsants or anti-seizure medications do you use on Batten disease patients?

    To treat Batten disease patients the doctors prefer to use anti-seizure medications with a less toxic effect. First, they will choose a more effective medication to control the seizures; second, they will adjust the dosage of the current medication to reduce the damage to the liver functioning and renal functioning. After being admitted to our hospital, the doctors will assess the patient and choose the proper medications and dosage for the treatment. EVERYTHING IS INDIVIDUALIZED.


  • For Batten disease treatment, what type of stem cells are used?     Q&A

    For the treatment of Batten disease, our doctors prefer to use neural stem cells, and in the treatment procedure, there are 4 separate stem cell injections (once per week) with 5 million stem cells in each injection. According to our clinical research and laboratory tests an individual can only handle a limited number of stem cells from external sources effectively. For children suffering from Batten disease, 5 million stem cells in each injection is the most effective number. If we implanted more stem cells into the patient's body there would be no improvement but it would add to the cost and more importantly, it would add a risk of developing encephalitis and other side effects.

     


  • Yana Ruban-Batten disease(Kazakhstan)Post on May 30, 2011     BATTEN DISEASE

  • Santiya -Batten disease(Argentina)     BATTEN DISEASE

  • Benjamin - Neuronal Ceroid Lipofuscinosis (Chile) Post on November 27,2010     BATTEN DISEASE

  • Argentinean Patient, Batten Disease     Doctor Blogs

  • Neural Stem Cell Transplantation Offers Hope To Batten Disease     News
    Although NCLs are classified as rare diseases, they often affect more than one child in families that carry the defective gene, and tragically, are always fatal.

  • The Box of Love for Batten Disease Patients     News
    The Box of Love for Batten Disease Patients

  • Maresu Luis Eduardo-Batten disease(Argentina) Post on 2 February,2010     BATTEN DISEASE

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    Some Facts About Our Unique Stem Cell Therapy

  •  What types of rehabilitation training is done?
  •  Is other therapy done in addition to stem cell infusion?
  •  Is general anesthesia used?
  •  When I send my records to your hospital, does a doctor read?
  •  Is it possible for you to manufacture the TPP1 enzyme and deliver it?
  •  What medications do you use on Batten disease patients?
  •  If your hospitals have an age restriction on patients?
  •  About the neural growth factors that your medical center use
  •  For Batten disease treatment, what type of stem cells being used?
  •  How long after surgery will it be before I can bathe or shower?
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